The BEST guide to Down Syndrome Blogs
Yes, you read that right. Look no further, you have found The BEST guide to Down Syndrome Blogs on the Web. (disclaimer, if you know of a blog not listed, email us so we can see about getting it added in!)
If you are anything like me, you want to know about Down Syndrome from every angle, not just the terribly daunting information you may find on medically-laden sites. You want REAL information from REAL families living with REAL people who have Down Syndrome. That is what I wanted in the beginning, and that is what continues to inspire hope as time goes on. My goal was to pull together a list so that you don’t have to search endless keywords like I did in the beginning. That way it is easy for you to find HOPE with the click of a button. So, without further delay, here it is…
Being a teacher can bring about many life lessons and adventures. However, nothing compares to when you become a mother. Our oldest is Kaden who is a sports crazy, baseball obessed, kind hearted, and independent five year old. Our second Kaleb, came into this world showing us he is going to do his own thing by coming at only 28 weeks resulting in an extended NICU stay and having a birth Down syndrome diagnosis. Kaden teaches us new life lessons as he continues to grow and enter new stages in life. Not to be outdone Kaleb is determined to show us life from a different perspective. This is our life; our adventures, reflections, and life lessons.
An Extra Blessing. Sharing stories, advice and some extra blessings. Occasional musings about everyday life with a little girl who has an extra chromosome. Some helpful tips and encouragement added at times. Follow along and you may find out how beautiful Down syndrome is.
Baby By Oakley follows our daily life as a new family of five. Our two girls keep us busier than ever and we recently welcomed our third child. Baker was born with Down syndrome and a congenital heart defect. We’re slowly finding our new normal when it comes to raising a child with special needs but we wouldn’t have it any other way! – Mackenzie
BeanPost Farmstead. I talk about our crazy homesteading and homeschooling life, real food, growing and eating it, raising kids, including our 2 who have Down Syndrome, and the faith it takes to do it all! -Joy
I started writing when we got a prenatal diagnosis for Down syndrome. Now I continue to write about the ups & downs of being a special needs mom. I aim to normalize Down syndrome.
I share our stories of hope & optimism because I believe that life is what you make it. Baby Lemonade Blog.
Beyond the Waves Blog. I’m Julia, Michael’s twin sister. I’m a chocolate-loving student athlete, and currently in my last year of Undergrad studying General Biology and swimming for UC San Diego. When I’m not training in the pool or working, I love spending time by the beach or cooking. Michael, my twin who has Down Syndrome, was my inspiration for making this blog. He is completely non-verbal, but never fails to show his love to everyone. He loves going to the beach and watching the waves, along with going on walks.
I am Bridget . We have a blog/website called Thebreastfeedingmommy.com in our blog we share breastfeeding tips/stories and we also share all things mommy, I have also started doing special needs/abilities mom posts, Rycker also has an official page for his Facebook blog page on the website (Rycker: the ups and Downs)
We have a beautiful, captivating and adored baby daughter called Coraline. Born 7 August 2017, we discovered unexpectedly within hours, that she has Down’s Syndrome and two holes in the heart. We did not know anything about Down’s Syndrome when she was born. This blog is about our journey of growth. Coraline and Us.
Winging motherhood like my eyeliner. Being a new wife and a new mom to a Warrior Princess with an extra chromosome with all its worry, joy, sorrow and laughter. Check out Dear Charys
Counter Culture. My name is Ann and I live in Michigan. I married a man named Greg who is truly my soul mate. I believe in soul mates which I know not everyone does. I just feel fortunate and grateful for the fit that we are. We have three girls which is a dream come true. We struggled with getting pregnant all three times so each time we conceived it was so miraculous (like all life is). I plan to talk about some of my struggles with parenthood which include the special needs of deafness and Down syndrome.
Grown Ups and Downs, an adventure with our adult son with Down Syndrome.
Down Syndrome is more than a disability, come into our world and see the down syndrome diaries. Growing up with Keyaan.
I am River. Fighting to give my son a voice in a world that sees him as less
Inclusion Evolution advocates for inclusion in school and work for individuals with Down syndrome. My goal is to empower parents, teachers, employers and self-advocates to create better opportunities for our loved ones through advocacy. Written by Courtney, a former journalist and teacher, current advocate, proud military wife, and domestic engineer to 3 kids (one who happens to rock an extra chromosome). Welcome to my virtual soapbox for the empowerment of individuals with disabilities. Let’s advocate!
Jedidiah’s Journey is the story of one little boy and his family. Mistie Ellsworth is a young mother of two and her oldest son, Jedediah, happens to have Down Syndrome. Jedediah, or Jed for short, is three and a half and a big brother to Wyatt, who will turn one next month. Mistie enjoys doing home therapy with Jedediah, blogging, traveling and going on daily adventures with her boys.
At Julia’s Way we are working to support and encourage mothers who would like to Breastfeed their babies with Down Syndrome. Julia’s Way is not only a blog, but also a non-profit organization dedicated to inspiring parents, medical professionals, and the general public to reimagine what’s possible for those living with Down syndrome through education,advocacy, and awareness.
Kimberly Wyse. Just to add a cherry to the top of our little family, we decided to go for it one more time! Baby #3, Redmond Samuel, was born on March 1, 2017. He brought some surprises with him, giving us a very challenging first six months of his life. We made it through though! He’s our miracle baby, rockin’ an extra 21st chromosome, delighting our hearts every day.
Stefanie is a wife and mom of four who lives in Pittsburgh with her family. Although she has been blogging for nearly a decade, she began to share their Down syndrome journey after her youngest child was born with a surprise Down syndrome diagnosis. Through her parenting and lifestyle blog, she hopes to share what life with Down syndrome is really like. Spoiler alert: It’s actually quite ordinary! Lexie Loo Lily Liam & Dylan too.
The Littlest Lambs. Our twin daughters have mosaic Down syndrome and we are on a journey together of learning more about this rare syndrome. This is a special blog where I hope to encourage others through sharing my faith journey, especially moms, moms with children with disabilities, and moms of twins.
The Lucky Wells, One mom’s ramblings about life, love and Down Syndrome.
MAMAbility
is the blog of Cara, a Christian, wife, mom, scholar, and advocate for the differently-abled — this blog is all about the inspiration and challenges I encounter as I juggle these roles on a daily basis. This blog isn’t just about my juggling act, however. I’m hopeful mamability.com can become a space where we (as in all working/busy moms) can begin to learn from each other.
Our Blessed Arrows. Raising 10 kids and blogging about life as they know it, blessed by children and Down Syndrome.
Lissa is a mom of 2 children with special needs: one son with ADHD and additional development/speech delays and 
one daughter with Down syndrome. She discusses all that comes with life: victories and fears, extra appointments, new becoming normal, and more. She aims to show others that special needs are not scary, just different and remove the stigma that comes from not knowing.
Check out her stories at Raising Special Roses.
Three With a Twist. I’m a wife and mom of three amazing girls – our oldest is like a little mommy, our middle is a firecracker with a lot of sass, and our Gigi, born in November 2014, is a joy to all of us. I received a prenatal diagnosis of Trisomy 21 (Down syndrome) at 11 weeks of pregnancy through NIPT (Non-Invasive Prenatal Testing). I’ve been blogging since Gigi was born. My writing has been featured on The Mighty and will also be included in the 10th Anniversary Edition of the book Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives.
The Mini Malpi is a UK blog.
At More Than a 
Mum You will find an honest blog about my life in general. I’m a mum of 3and my youngest happens to rock an extra chromosome. Come join in our mad world of ups and downs, not to mention all the craziness in between xxx
One Lucky Mum does a youtube channel you have to see. I started my Youtube channel to show the World that Downs syndrome isn’t scary, it’s not knowing anything about it is!!
Come and join us on our new little journey, I’ve heard the tour guide is pretty cute
💙
This Life We Got. I’m Shannon and I’m a mom to two beautiful girls that have forever changed my life. Haley is an active preschooler that keeps me on my toes and makes me laugh all day long. Sienna is my smiling baby girl who happens to have an extra copy of her 21st chromosome. When Sienna was born, we were completely unprepared for her Down syndrome diagnosis. The first year of her life has been a year full of learning and acceptance. Before Sienna entered our lives I suffered through four miscarriages and dealt with the challenges of Asherman’s syndrome. The past few years have taught me that you can’t plan your life. You can’t spend your life mourning what you thought your life would be. You have to be grateful for what you’ve got.
Be sure to visit Trista Park….I created my blog is to process through the journey. The prenatal diagnosis, the heart surgeries, life in general. It’s been a really good outlet for me to process all the emotions and events especially those of this last year. And through that, I hope to encourage other moms with kiddos with special needs that they are not alone and all the feelings are ok!
Up From Downs. From the diagnosis of Trisomy 21 – Down Syndrome, to other diagnoses and prognoses, odds and doubts, once so prevalent, were overcome through faith and miracles.This is the once in a life time chance we all look for – to see life more clearly, to know love more deeply, and to see wonders never cease as they can only be seen through the eyes of the pure of heart. So, come, join the experience and travel the journey with us, as we reflect back on almost three decades of scientific and medical advancements, witness now the achievements of many, and look forward to the ever increasing Glory of God’s beauty in this world as He reigns far brighter with more than a little extra Love, perseverance, and Joy coming Up from Downs.
Woven with 47 I’m just a stay-at-home mom of two, with two in Heaven. I’ve been married to my best friend, Josh, since August 2015. I’m passionate about normalizing Down Syndrome and reducing the number of Down Syndrome diagnosis related abortions.
I’m Maggie and I blog at yosoylalay.com. I began writing when Tessa was born four years ago. My reason for writing is to store family memories, but I am known to digress frequently on topics related to Down syndrome – mostly about inclusion and education. I’m not a blogger who seeks out followers (my audience is mainly my mom and mother-in-law), but I’ll take anyone along for the ride who is interested
Down Syndrome Fiagnosis Network is a non profit started by a group of moms who were tired of the diagnosis narrative including “I’m sorry”. We started as a private Facebook group where a small group of us having children the same age could come together to support and love one another. We have grown into the largest international non- profit to support families through the diagnosis period. We offer small online support groups or birth groups (we are close to 20 such groups). We provide ways for families to provide feedback to physicians and clinicians after receiving a diagnosis. We have a yearly retreat for all of our “Rockin moms” to recharge and connect in real life with one another. The mission of Down Syndrome Diagnosis Network (DSDN) is to connect, support and provide accurate information to families with a Down syndrome diagnosis. Our vision is that all parents that receive a new diagnosis are provided with accurate, current information through their medical providers every time.http://www.dsdiagnosisnetwork.org/
If connecting families with support and information is your goal, uoubreally should check out our work. It’s been a true labor of love.
We love the DSDN and have featured an interview with Jen Jacob herself! We will also be attending the retreat in AZ this September and feel that the work of the DSDN is invaluable (you all are included on our blog resource page for new parents as well!) Keep up the good work!